Olympic torch raises awareness for SMS

Will Stevenson, father of Lily Stevenson who was diagnosed in 2010 with SMS, was selected to carry the Olympic torch on July 11th 2012 to raise awareness for the syndrome.

Will commented: "I really enjoyed my moment, but my 'fame' lasted much longer than the few minutes I was carrying the torch as people wanted to hold the torch and have their pictures taken with me long into the evening and again this morning."

Will had hoped to carry his five-year-old daughter on his shoulders however he said: "Unfortunately they wouldn't let me carry Lily. They said she could run alongside, but that wasn't really an option for her."