The Smith-Magenis Syndrome Foundation UK has a reserved place for a lucky runner. We would like to use this to raise as much money as possible in this prestigious event.
We are looking for someone with ties to the SMS community who is motivated to support our families and has sufficient running experience to make this an achievable goal.
Are you up to it?
Already secured a place in the Virgin Money London Marathon and would like to run for the SMS Foundation UK? Get in touch and let us know how we can help.
The SMS UK Foundation will hold its AGM on Sunday 22nd May 2016 at the Glasgow Science Centre, 50 Pacific Quay, Glasgow G51 1EA.
If you would like to attend please let one of the trustees know so we can track numbers. Thank you.
Information and Advice for Caregivers & Professionals
The Smith-Magenis Syndrome Foundation are very pleased to mark our SMS global awareness day by the release of our newly updated and formatted booklet ‘Information and Advice for Caregivers and Parents’. This can now be downloaded from our website by clicking here. We would like to thank Dr Lucy Wilde for all her dedicated hard work in researching, writing and creating this revised edition as well as all the members of the SMS professional board who provided input into the booklet. We hope you’ll agree that it is packed with useful information and has lots of practical advice for carers and parents raising a baby, child or adult with Smith-Magenis syndrome.