Genetic Disorders UK to sponsor creche at 2013 conference
We are delighted to announce that Genetic Disorders UK will be sponsoring the creche at our 2013 conference in Birmingham. The foundation will receive a grant of £4,500 from Genetic Disorders UK, the national charity that organizes Jeans for Genes Day.
Jeans for Genes Day raises money for Genetic Disorders UK. Genetic Disorders UK provides much needed advice and support for individuals and families affected by genetic disorders www.geneticdisordersuk.org.
Inquiry into Sussex Police restraint of disabled child
SMS Foundation UK - Press Statement
The Smith-Magenis UK Foundation is aware of the situation being reported in West Sussex. It is inappropriate for us to comment on specific cases, especially where complaints have been made and investigations are underway.
Smith-Magenis Syndrome is a very complex and demanding genetic condition. Inherent in the symptoms are behavioural challenges, self-injurious behaviours, impulsivity, and destruction of items. A considerable amount of effort is made by parents and carers to minimise these through behaviour management strategies, medication, and as a last resort, physical intervention. All of this has been derived through extensive research into this syndrome. The methods and responses used should be appropriate to protect the child, parents and carers and anyone or anything in the immediate vicinity.
The lack of understanding and training in conditions such as Smith-Magenis Syndrome can lead to people entering from outside the person’s network to respond with more extreme methods of restraint during incidents of challenging behaviour than are actually required. Whilst we cannot offer an opinion to the appropriateness or otherwise of the police action taken in this case, we hope that there will be lessons learnt from the investigation that is underway that will help improve incident management involving all vulnerable children and adults including those exhibiting challenging behaviours.
Date and venue announced for 2013
We are pleased to announce that the 2013 conference will be held over the weekend of 1st-2nd June. We will be returning to the Crowne PLaza Hotel NEC Birmingham which successfully hosted the 2009 conference.
The Crowne Plaza Birmingham NEC hotel offers contempoary hotel accommodation featuring air-conditioning, high-speed Internet access (additional charge) and TV with movies on demand. The Crowne Plaza Birmingham NEC hotel is located on the doorstep of the LG Arena and NEC, near to Birmingham International Airport. Set in landscaped grounds overlooking Pendigo Lake, the hotel is just a 5 minute drive from the Airport and rail station, 10 miles from Birmingham City Centre and within easy reach of many major UK motorways (M5, M6, M40 and M42).
To read more about the conference click here.